Veronica finally got the cast off her right foot Monday. She had surgery on April 18th to correct her club foot. I can’t even describe the feeling of seeing her foot “straight” for the first time ever.
| Veronica in her wheelchair |
Imagine having a child with a disfigured limb. You learn to live that it is “just the way God made them.” And then you find a doctor that can fix it. You make the appointment. You sit by the phone every day waiting for the call that tells you “sorry, but we can’t do the surgery.”
But the doctor never calls. You begin to realize that this surgery was meant to be. But you’re taking a big risk. Your child’s foot may be “fixed” but if she can’t bear weight on it then she will never walk again.
So you buy airline tickets and you plan your trip to the hospital for another surgery of a lifetime (I’ll explain the other surgeries in another blog.) All your close friends are totally siked but you know in the back of your mind that they have no idea what you are up against. It’s so easy for something to go wrong—and if it does then it’s all your fault.
Before you get on the plane, you speak to your child’s Sunday school teacher on the phone. She says, “I just wanted you to know I love your daughter. We’re all praying for her. What is this surgery going to do exactly?”
Well that’s a big question, so you search for answers. “It’s supposed to make her foot flat so she can walk better—you know help with her balance.” But in the back of your mind, you know that there is no way to really know what this surgery is going to do—it will either work or it won’t.
Having a disabled child is never easy. Not only are you faced with making decisions about surgeries and therapy, but you are faced with the daily challenges of feeding them, dressing them, and getting them from one place to the next.
Veronica has been wheelchair bound since April 19th, and I have to admit that it has been an eye-opening experience to me. My back is in constant pain from picking her up and carrying her 85 pound body up the stairs and into the car. And I now notice how limited handicap parking can be. Sidewalks usually suck for a wheelchair and most places are not as handicap accessible as you might think.
| On a recent trip to NC to visit family--Veronica had to ride the gator while everyone else went swimming. |
But I know that now that the cast is off and her foot looks almost perfect now, then it won’t be long until she is up and walking again. The wheelchair will be put away and only used for long trips and school.
When I’m not feeling sorry for myself, I realize how lucky I am as a parent that my child is not wheelchair bound forever. I also realize what a blessing it is to have a child with special needs—it has forced me to look beyond myself.
When I was pregnant with Veronica, I found out she has Arthrogryposis. I was lucky enough to connect with other parents who have raised children with this disabling joint disease. One mother sent me this poem and I carried it around with me for several years until I passed it on to another mother who just found out her daughter was born with Arthorogryposis. I think about the words in this poem on the days when my back hurts so bad I can’t sleep and I’m sick and tired of dealing with insurance companies and a hurt and frustrated child. It reminds me that we all have a purpose in life and that it takes a special mom to raise a special child.
“The Special Mother “by Erma Bombeck
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
"Armstrong, Beth, son. Patron Saint, Matthew."
"Forrest, Marjorie, daughter. Patron Saint, Celia."
"Rutledge, Carrie, twins. Patron Saint...give her Gerard. He's used to profanity."
Finally he passes a name to an angel and smiles. "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who knows no laughter?
That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair.
Once the shock and resentment wear off she'll handle it."
"I watched her today.
She has that sense of self and independence so rare and so necessary in a mother.
You see, the child I'm going to give her has a world of it's own.
She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive.
Yes, here is a woman whom I will bless with a child less than perfect.
She doesn't know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see--ignorance, cruelty,
prejudice--and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air. God smiles.
"A mirror will suffice."
Most women become mothers by accident, some by choice,
a few by social pressure and a couple by habit.
This year nearly 100,000 women will become mothers of handicapped children.
Did you ever wonder how these mothers are chosen?
Somehow I visualize God hovering over Earth
Selecting his instruments for propagation with great care and deliberation.
As he observes, he instructs his angels to take notes in a giant ledger.
"Armstrong, Beth, son. Patron Saint, Matthew."
"Forrest, Marjorie, daughter. Patron Saint, Celia."
"Rutledge, Carrie, twins. Patron Saint...give her Gerard. He's used to profanity."
Finally he passes a name to an angel and smiles. "Give her a handicapped child."
The angel is curious. "Why this one, God? She's so happy."
"Exactly," smiles God. "Could I give a handicapped child a mother who knows no laughter?
That would be cruel."
"But does she have the patience?" asks the angel.
"I don't want her to have too much patience, or she'll drown in a sea of self-pity and despair.
Once the shock and resentment wear off she'll handle it."
"I watched her today.
She has that sense of self and independence so rare and so necessary in a mother.
You see, the child I'm going to give her has a world of it's own.
She has to make it live in her world, and that's not going to be easy."
"But Lord, I don't think she even believes in you."
God smiles. "No matter, I can fix that. This one is perfect. She has just enough selfishness."
The angel gasps, "Selfishness? Is that a virtue?"
God nods. "If she can't separate herself from the child occasionally, she will never survive.
Yes, here is a woman whom I will bless with a child less than perfect.
She doesn't know it yet, but she is to be envied.
She will never take for granted a spoken word.
She will never consider a step ordinary.
When her child says momma for the first time, she will be witness to a miracle and know it.
I will permit her to see clearly the things I see--ignorance, cruelty,
prejudice--and allow her to rise above them.
She will never be alone.
I will be at her side every minute of every day of her life
Because she is doing my work as surely as she is here by my side."
"And what about her Patron Saint?" asks the angel, his pen poised in the air. God smiles.
"A mirror will suffice."














